Saturday, May 26, 2012

What kids say
"I never get to do my things. I always have to be with my sister."

Sometimes I'm embarrassed when people stare at my brother in his wheelchair. But they don't know what fun he is."

peer group

"No-one knows my name. I’m always known as Sam’s sister. I feel like I’m invisible at times."

"My sister always wrecked my things – she didn’t mean to, but it upset me. Mum put a lock on my door so that she can’t get into my room."

"People look at me when I am signing to my sister and they think I am deaf too, so they shout. They get embarrassed when I tell them that I can hear them perfectly well, but I always say it in a nice way so that they don’t feel bad, unless they’re really mean people."

helping "I sometimes get mad because my brother gets all the attention. I’d like some help sometimes too."
"I feel really sad sometimes because I know my sister will never get better. Then I think that I’m lucky to have her even if it’s not for ever."

"My brother has hearing problems but he’s the best runner in the school and he’s on the footy team

1 comment:

  1. Hi Nicole - These quotes highlight the importance of making sure the sibling of a child with a disability has their own identity and voice. I think it could be challenging to balance the needs of all your children. When a child is diagnosed with a disability they may require extra attention and support, which may leave the sibling feeling left out and alone. Families have to find a way to set aside some alone time with that child.

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