I got to thinking, yes parents know they need to set aside time for all of their children and havinga child with a disability can sometimes make that difficult, but how do they do it and what exactly do they do? I read an article and it says, :Adult siblings now are speaking out about what they needed and, in many cases, what they missed as kids. It’s not a question of love. Most report feeling loved by their parents and love for their sib. What it comes down to is a longing for information, protection, room to be a normal kid, and parental time and attention."
http://psychcentral.com/lib/2006/taking-care-of-the-%E2%80%9Cother-kids%E2%80%9D-a-friendly-reminder-for-parents-of-disabled-and-non-disabled-kids/
This article was informational and it talks about how you nee to set aside fr the family as a whole, with each paretn and thn both parents, and with just child--parent or both child-parent. With the day to day demands on life I cant even imagine how hard it is. I know that I struggle somestimes with work and shcool and job junting and house work that I have to make myself make time for just my daughter and just my fiance as well as time for all of us as a family. It makes you think and put things into perspectve. Chldren remember everything and you want them to have the foundtion for a healthy relationship with spouses and with their children so that they are successful later on in their adult life. AGAIN where is the parent guidebook?!?!?!
I honestly do not know how parents know what to do and how to handle the various needs of their children. A friend of mine married a widower with a young daughter. Shortly after they were married, they had a baby girl with some sort of vision disorder and would completely lose what little vision she had if it wasn't taken care of. They spent SO MUCH TIME trying to raise money to get the baby to China for some special treatment, and they went to so many doctors and such. I know that it had to be so hard to juggle the stress of taking care of the baby while trying to give the other child the attention and love that she needs.
ReplyDeleteHi Nicole - I really enjoyed reading your blog. You highlighted how children are personally affected by having a sibling diagnosed with a disability. The resources you found will assist me in effectively supporting families. Most of all you demonstrated that each family, sibling, and child is unique. We can now use what we learned during our inquiries to better support and collaborate with families.
ReplyDeleteI can't believe we are graduating. Congratulations to us!!!!! See you at graduation.
Nicole, You did a very nice job with your blog. :)
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